JBB Update

JBB has Kawasaki disease but he has responded very well to treatment. We are home now and he is tucked up safe in his bed but this weekend has been the most harrowing of all of our lives. Saturday was absolutely horrible.

Thankfully, the fever has broken, his eyes are almost back to normal and the lump on his neck is reducing. He has had studies done on his heart but they are more of a baseline, he will need to be assessed again in 6-8 weeks as the heart damage can happen from now. Thankfully, the odds for that go from 30% of children affected getting heart defects to 3% if treated early, which he was.

I am absolutely exhausted and I am still very worried about our beautiful little miracle child but I am thankful that I followed up with the doctor, I am thankful that he sent us to the hospital, I am thankfully that the hospital recognized the symptoms straight away and I am thankful for the love, help and support that were showered on us over the weekend, we are one lucky family. Thank you all for your comments of support, I really appreciate it.

I will update further when I can, for the moment, I need my bed and about 1000 hours of sleep.